E-ISSN 2636-865X
Research Article
Preference of patients with neuromuscular diseases concerning complementary and alternative medical methods
1 Clinic of Physical Medicine and Rehabilitation, Health Science Universty İzmir Tepecik Training and Research Hospital, İzmir, Turkey  
2 Department of Physical Medicine and Rehabilitation, Dokuz Eylül University School of Medicine, İzmir, Turkey  
3 Clinic of Neurology, Health Science Universty İzmir Tepecik Training and Research Hospital, İzmir, Turkey  
4 Clinic of Pediatric Neurology, Health Science Universty İzmir Tepecik Training and Research Hospital, İzmir, Turkey  
5 Clinic of Neuromuscular Diseases, Health Science Universty İzmir Tepecik Training and Research Hospital, İzmir, Turkey  
6 Erzurum Provincial Health Directorate, Public Health Unit, Erzurum, Turkey  
Neurol Sci Neurophysiol 2019; 36: 202-207
DOI: 10.5152/NSN.2019.12064
Key Words: Alternetive medicine, complementary therapies, neuromuscular diseases
Abstract

 

Objective: Complementary and alternative medicine (CAM) is the term for medical products and practices that are not part of standard medical care. Neuromuscular diseases (NMDs) are disorders of the neurons, peripheral nerves, neuromuscular junction, muscles. They are clinically progressive and medical treatment is limited.

Methods: The aim of this study is to evaluate the use of CAM in NMDs and investigate the preferences of patients concerning the CAM methods that are frequently used.Patients and their caregivers who were followed up at the NMDs unit in the Department of Physical Medicine and Rehabilitation were included . Demographic data of the patients were collected; their functional activity scores, wheelchair usage, and use of CAM were questioned. A total of 246 patients were included; 108 patients used CAM. Patient-specific diet, nutritional support, mental body treatments, manipulative techniques, and energy techniques were investigated.

Results: The most commonly used CAM method was dietary supplements. The use of CAM was significantly higher in patients with high socioeconomic and low education status (p=0.004). There was a significant relationship between wheelchair use and the use of CAM (p=0.001). The percentage of patients who benefited from CAM was 48.6%. It was shown that CAM was used at high rates in addition to medical therapies in NMDs, the biological-based therapies ranked first, and that using CAM was more common in the patients who were more immobile and in those with better socioeconomic status and low educational level.

Conclusion: Complementary and alternative medicine is frequently used in NMDs. Further evidence-based studies should be performed in order to assess efficacy of integrating this common use to the NMDs.

You may cite this article as: Sertpoyraz FM, Dikici A, Erdinç Gündüz N, et al. Preference of patients with neuromuscular diseases concerning complementary and alternative medical methods. Neurol Sci Neurophysiol 2019; 36(4): 202-7.

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